Dylan had his visit to Boston on Friday, April 10th. All went quite well. He saw a new doctor, Dr. Sawicki, who he seemed to like a lot. He gained about 5 pounds and has been eating quite well.
Because he is 5 now, he will be starting a medication called Pulmozyme (a post on the medication is to come) which helps keep his lungs clear. Hopefully, this will mean less infections and coughing for Dylan!!!
We are also waiting for his new chest PT vest! We were very excited to hear that this would be covered by insurance, and even more excited that Dylan liked the vest when he tried it!
He also had blood work and a chest x-ray which we are waiting to hear the results of this week.
Showing posts with label Boston. Show all posts
Showing posts with label Boston. Show all posts
Tuesday, April 14, 2009
Saturday, April 4, 2009
Children's Hospital
It is that time again... another trip to Children's Hospital Boston for Dylan. Last time we were there he had lost weight and was very uninterested in eating. Since that appointment he has gained somewhere between 4-5 pounds. We are so excited!!! This is all thanks to our friend Sue who gave us special weight gain shakes that Dylan loves to drink. What kid wouldn't like a milkshake for breakfast every day?
For anyone that does not know Dylan is my 5-year-old son who has cystic fibrosis. He has been living with this disease since birth. Dylan has been doing well, but winters are very difficult. He has a persistent cough most of the Winter and often does not feel well. We are so happy that Spring is here, but that brings on a new host of problems, mainly allergies!! Dylan seems to be allergic to almost everything, except cats.
This trip to Boston is going to be especially exhausting because we need to do his annual chest x-ray and blood work. The chest x-ray is no problem, but getting a 5-year-old to be excited about having a ton of blood taken is impossible. I am just hoping that it goes quickly this time. He is quite brave for what he has to go through every time we go to Boston!
We also have to talk with the docs about school. I cannot believe that Dylan is starting kindergarten next year.
Hopefully the doctors will have good new about Dylan's health.
For anyone that does not know Dylan is my 5-year-old son who has cystic fibrosis. He has been living with this disease since birth. Dylan has been doing well, but winters are very difficult. He has a persistent cough most of the Winter and often does not feel well. We are so happy that Spring is here, but that brings on a new host of problems, mainly allergies!! Dylan seems to be allergic to almost everything, except cats.
This trip to Boston is going to be especially exhausting because we need to do his annual chest x-ray and blood work. The chest x-ray is no problem, but getting a 5-year-old to be excited about having a ton of blood taken is impossible. I am just hoping that it goes quickly this time. He is quite brave for what he has to go through every time we go to Boston!
We also have to talk with the docs about school. I cannot believe that Dylan is starting kindergarten next year.
Hopefully the doctors will have good new about Dylan's health.
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